I've been bouncing from one wedding to another for the last couple of weeks, working on sleep deprivation and junk food.. we also had an unexpected turn of events, so I haven't really been up to communicating.
Basically, according to the usual preemie checklist, B could come home now and we expected that he would. Instead, our new attending is very concerned about B's slow weight gain and is (a) starting IV nutrition again to supplement his oral feeds, and (b) scheduling his ostomy reversal for 2 weeks from now. Instead of coming home for a month before his next surgery, we are looking at somewhere between 6 and 8 (or more) weeks in the NICU.
I'm bummed, my husband is bummed, all we can hope is that he handles his next surgery better than the previous 7. I keep reminding myself that an ostomy reversal is never a bad thing - I certainly won't miss placing an ostomy pouch on an angry baby - we had just really hoped to have a few golden weeks (or months) at home and give him time to grow before sending him back again.
Looking around the hospital, I know prolonged stays like ours can happen, but I've never heard of anyone else spending quite this much time in the NICU before discharge. I'm longing to get him home, even for just one night, but it looks like we have a while to wait.
That sucks, I hope you get some good news soon!
ReplyDeleteOh, no. *hugs* Hoping everything goes well!
ReplyDeleteThat blows, I hope everything goes well and he's home as soon as possible!
ReplyDeleteI am sure the docs know what they're doing, but it seems so bullshit -- if he's not an emergency priority for the nurses, if he's eating... I don't know. I was so hoping you'd have some time at home before the next surgery, for all of your sakes.
ReplyDeleteStill praying.
I second everything BFF said. It would seem it's almost always better to be out of the hospital than in it (if you're stable, etc, as he seems to be). I'm so sorry this has turned into such an extraordinary ordeal, I continue to hope that his physical healing reaches a point where he can go home and you can all begin the fun family healing.
ReplyDelete